Announcement

Collapse
No announcement yet.

Colorado rally...

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Colorado rally...

    Hey guys,
    Just wanted to let some of you know, it doesn't look like I'll be able to make this year's rally. And, yes... I'm really bummed out about it... but...

    This past November, my GF Lonnette woke up in real pain, and discovered a huge knot on the side of her left breast. She called me, and I told her to get to the dr. immediately to get checked out. Turned out to be stage 2b invasive breast cancer.
    She was given 2 treatment paths: 1- it just barely was small enough to qualify for a lumpectomy, followed by radiation... or 2- mastectomy, followed by 4 rounds chemo, once every 3 weeks, 12 weeks total.
    She had past experience with cancer with other family, and saw first hand what radiation does. She talked around, picked the top breast surgeon in the state, and opted for option 2 route.
    Feb. 6th, during her mastectomy, cancer was discovered in her sentinal lymph node... they then took 16 more nodes in a biopsy. This changed everything.
    She had also opted for reconstructive surgery, and an expander was placed.
    This was the most painful brutal part of the surgery. Each week, I take her to her plastic surgeon's office. They stick a needle in her, into the port for the expander, and pump 100 cc's of saline in. The reason this is so painful is because the expander was placed between her ribs and pec muscle that was pulled from her ribs during the surgery. She now has 700 cc's of saline placed. No one told her how awful the pain would be.
    She then went in to have a port surgically placed on her right side, at the base of her throat.
    Then, another setback occurred... she received her Onco score. There are 3 tiers. Low, Moderate, or High, scored on a point system. This shows possible risk of reoccurrence of the cancer within the next 5 years... she scored a 31- 1 point into the High scale. Suddenly, the entire treatment plan changed, and got a lot rougher. Now, she's enduring 16 rounds chemo, not 4. The first 4 rounds, two chemicals, not one, given every 2 weeks, not 3. A Neulasta OnPro device was attached to her stomach every two weeks. Chemo on Friday's, go home w/ Neulasta, then 27 hours later, (Sat about 5 pm) it injects a chemical in her that causes CBC counts to rise back up by creating white and red blood cells in the bone marrow to be created to replace what the chemo destroys. This lowers her risk of infection. But, it has rough side effects. Terrible nausea/vomiting, weakness, aching bones... made her flat of her back for 5 days or so.
    The week following her first round, she lost all of her hair. She had beautiful blonde hair, and this was pretty traumatic for her.

    She has completed the rough 4 rounds (8 weeks.) Next, a different chemical, given once per week. Thursdays are bloodwork and oncology visit, Fridays are chemo. So far, this has been easier, far less nausea. But neuropathy is a side effect, and the med for that makes you sleep...deeply.
    We had to forego this past Friday's chemo visit due to a root on one of her wisdom teeth breaking and poking out her gum, so instead I took her to an oral surgeon for tooth extraction. She did fine with that.

    This next Friday will be her halfway point. Then, a petscan to see if any more cancer shows up. Next, is where we don't know. She needs to have more surgery, have the expander removed, and the permanent implant placed. The problem now is the treatment plan requires radiation, too. This totaly screws up the plastic surgery. If they radiate w/ the expander, screws it up and her, can't place the implant. If they remove the expander, place the implant, then radiate, screws up the implant. If they remove the expander, give her time to recover from that, then radiate, no implant could then be placed, and all the torture over the past several months was for nothing and she'll be deformed.
    Some choice, huh?

    Oh...She also has 2 20 yr. old adopted autistic twins she has cared for since they were 2 days old... along with 2 special needs dogs to boot.

    So, I've been quite busy since last November. All of her family lives in Colorado, so I've been helping her since this happened.

    We thought for a while she would be through w/ chemo, and all would be fine in time for me to make the rally in July, but then all that changed when the Onco score came back. So, sadly, I have to ask for a raincheck this time guys?

    She was quite worried about me riding anywhere... much less, going out of state to a rally. If I got hurt, not only could I not help her, but she couldn't help me, either! So, I promised her I would take this year off from riding and not to worry.
    I haven't ridden at all since December. (About to go nuts!! ) I go out once per month, take the cover off the bike, start it, run it through the gears on the center stand, then kill it, and cover it back up.

    I sincerely hope each and every one who attends the Colorado Rally this year has a great and safe time. I know it'll be a blast, 'cause this group's blessed to have a guy like Bonz coordinating it again this year.

    I'll sure miss getting to see you all again, but hope you guys will please excuse me on this one, and I'll catch up with you all down the road on the next one, ok?
    Thanks in advance for understanding.
    Bob
    '82 XJ1100J Maxim (has been sold.)

    '79 F "Time Machine"... oh yeah, Baby.... (Sold back to Maximan)

    2011 Kaw Concours 14 ABS

    In the warden's words from Cool Hand Luke;
    "What we have here is a failure to communicate."

  • #2
    Remember to take care of yourself also Bob. Too often the caregiver forgets that and you're no help to her when you become run down from trying to do it all.
    Best wishes
    "If A equals success, then the formula is: A = X + Y + Z. X is work. Y is play. Z is keep your mouth shut." - Albert Einstein

    "Illegitimi non carborundum"-Joseph W. "Vinegar Joe" Stilwell



    1980 LG
    1981 LH

    Comment


    • #3
      Originally posted by dpotter58 View Post
      Remember to take care of yourself also Bob. Too often the caregiver forgets that and you're no help to her when you become run down from trying to do it all.
      Best wishes
      What he said..
      Greg

      Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid.”

      ― Albert Einstein

      80 SG Ol' Okie;79 engine & carbs w/pods, 45 pilots, 140 mains, Custom Mac 4 into 2 exhaust, ACCT,XS850 final drive,110/90/19 front tire,TKat fork brace, XS750 140 MPH speedometer, Vetter IV fairing, aftermarket hard bags and trunk, LG high back seat, XJ rear shocks.

      The list changes.

      Comment


      • #4
        Six two and even, over and out!
        -- Scott
        _____

        2004 ST1300A: No name... yet
        1982 XJ1100J: "Baby" SS Brakes, '850 FD, ACCT
        1980 XS1100G: "Columbo" SS Brakes, '850 FD, ACCT
        1979 XS1100SF: "Bush" W.I.P.
        1979 XS1100F: parts
        2018 Heritage Softail Classic 117 FLHCS SE: "Nanuk" It's DEAD, it's not just resting. It is an EX cycle.

        Comment


        • #5
          I was looking forward to meeting face to face, but I understand! Been through a lite version with my son some years back..... Take care and I hope for the best for both of you.
          Ray Matteis
          KE6NHG
          XS1100 E '78 (winter project)
          XS1100 SF Bob Jones worked on it!

          Comment


          • #6
            Bob I know where you are coming from, I also considered skipping the rally this year. My wife just finished her 12 rounds of chemo this last Tuesday. Luckily she does not have to worry about radiation (at least not yet). When we are caring for the ones we love we often put off our own needs and our wonts don't even come into play except for the desire for our loved one to get better. Be sure to take time for yourself even of it is just running through the gears on the center stand. I wanted to be there for her, go to every doctors appt. and all the chemo sessions. I was lucky that several of my wife's sisters live in the area and came over every Sat to clean the house. Our son insisted on taking her to some of the chemo sessions. This made the burden a little lighter. During this time all I cared about was her, making her as comfortable and pain free as possible. I was lucky enough to have family and loved ones to give us both support. Hopefully you are getting that same kind of support.

            We do understand and you will be missed at the rally and we will keep you and Lonnette in our prayers.
            Ty

            78 XS1100E - Now in Minnesota
            80 XS1100LG - The Punisher
            82 XJ1100 - Current project - The Twins
            82 XJ1100 - Wife's Bike - The Twins
            82 XJ1100 - Daughter's Bike
            72 Suzuki TS125 - Daughter's Bike
            72 Yamaha Mini JT2 - Youngest Daughter's bike (She wants a bigger one now)

            Comment


            • #7
              Aww Bob my prayers go out to you and Lonnette....
              1980 XS650G Special-Two
              1993 Honda ST1100

              Comment


              • #8
                Bob:

                Sorry to not see you this year but priority is loved ones and family. Best hopes to you and Lonnette.

                It amazes me to see the courage and fortitude cancer patients use to get through their treatments. Support from those around them is a bedrock for sanity.
                Jerry Fields
                '82 XJ 'Sojourn'
                '06 Concours
                My Galleries Page.
                My Blog Page.
                "... life is just a honky-tonk show." Cherry Poppin' Daddy Strut

                Comment

                Working...
                X